Living with inflammatory muscle Myositis

This was a global study done by investigators at Johns Hopkins, Seoul National University in Korea, and the Karolinska Institute in Sweden. They wanted to better understand how people living with inflammatory muscle diseases experienced their condition and its impacts on their lives.

These include physical strength testing, imaging studies such as MRI scans, and blood levels of muscle enzymes. Although patient-reported outcomes are widely used in different disease areas in rheumatology and neurology, they have not been well studied in patients with inflammatory muscle diseases.

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